So, life has been busy, and not in the best way. Monday we were discharged from the hospital and enjoyed a great Tuesday at home. Wednesday Easton’s J tube recoiled into his stomach. So, he was throwing up a lot and we had to go get that replaced at U of M Children’s Masonic. Then, Thursday the same thing happened. If it happens again, we will have to discuss a new plan. Easton had been doing great when we got home Friday but was running a low fever around 100. With his PICC line, anything over 100.5 we have to go to the ER to get labs and cultures done. He never reached that high and eventually it faded to a low 99 so I brushed it off as a teething fever. Saturday was SO good. Had a lot of fun as Easton was in such a good mood.
However, Sunday morning his low fever had returned. Around 9:30am it was 99.7. Nothing to worry about but something to keep an eye on. At 10:30am, Easton started acting weird and out of it. I took his temp again and it was over 102 so I rushed out the door to the ER. In the car, he lost consciousness for a moment but regained it quickly. By the time we were admitted, his fever was over 104. With Tylenol and Ibuprofen we were able to lower it but he was still uncomfortable. After labs and x rays were done, it was decided we would be airlifted to U of M Children’s Masonic. They started antibiotics as a proactive treatment. A 5 min FAST ambulance ride to the airport and a 45 min airplane ride later, and another quick 15 min ambulance ride, we pulled into the U of M ER. With his PICC line and 2 J tube changes this week, he is was high risk for infection and his labs hinted something is going on.
This morning, we found out that both his cultures came back positive. This means that his PICC Line is infected as well as his blood. So, we continued 2 courses of very powerful antibiotics and ibuprofen/Tylenol for his fever. Easton was not a happy camper, you can just see in his eyes he isn't feeling so hot. The antibiotics that we are using are very hard on his body and the infection is throughout his bloodstream, which is also tough on the body. We drew more cultures today, and those would have to be clear for 48 hours to go home. If they aren't clearing up, his PICC line ill have to pulled. Bacteria sticks to the plastic of the PICC line very easily and it is very hard to clear 100% of the infection. If we have to pull the line, he has to be clear of bacteria in his cultures for at least 24 hours for a new line to be placed. So, tonight we will hangout until we hear how his cultures develop overnight.
Easton did have a few good hours where he was happier and that was really good to see! He is such a trooper and tries to be happy even when he is feeling crummy.
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